© 2019  Sally Russell

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February 13, 2017

Today, a report of the experiences of 38 parents was sent to Hertfordshire's 'All Age Autism Partnership Board' with a call for action.

The majority of parents had very poor experiences of local services and of the diagnostic process. One mother wrote:

"I first became aware of PDA on a television programme and thought that was exactly like my son. I was then astonished/disgusted that professionals involved with my son all agreed...

February 13, 2017

The process of diagnosing Autism has changed in recent years, following the direction of the American diagnostic manual (DSM-5) which did away with the distinction of 'Asperger's syndrome', 'Autism' and 'others' and provided us with the formal diagnosis of ASD, with profiles then being described. Although it is the International manual that is more commonly used in the UK, the expected 2018 revision is likely to follow suit an...

November 1, 2016

A proposed amendment to the Children and Social Work bill would require assessment of children entering care to check for neurodisabilities (such as ADHD or ASD) and sufficient training of those supporting them.    It has received widespread support from charities and individuals.

The reason this is important was explained by one respondent: 
“ Without the right understanding of the way in which people think...

August 17, 2016

Pathological Demand Avoidance was described as a condition relatively recently, and while schools and parents are recognising children with the distinct set of characteristics, clinicians have correctly been awaiting more detailed research evidence. Separating out individuals from others with Autism is important as the nature of the support that they need is in some respects very different. 

This survey for the P...

August 1, 2016

This report describes the experiences of Isaac and our family while accessing services from CAMHS (Child and Adolescent Mental Health Service) and Social Care in Hertfordshire over the past 6 years.

It describes what was done well and what could have been improved upon. 

It is hoped that this case study will be valuable in the development of service commissioning and delivery, both locally and across the country.

Download th...

July 27, 2016

This personal profile is a resource intended to help identify individual PDA traits, and what actions can help. It could be adapted for use by others with Autism Spectrum Conditions, or other disorders. As a family, we used this completed example.

The resources have been published by the PDA Society and a blank template be downloaded from their 'other documents' resources page.
 
Use the template in Microsof...

July 27, 2016

The Demand-Anxiety cycle helps families explore what it means to have Pathological Demand Avoidance (PDA) and to explain the key aspects of the condition to others.

It illustrates the way in which the anxiety created by the need to avoid demands can become a continual cycle. It is in Microsoft Word document format so it can be personalised.

It has been published by the PDA Society. Visit their website for many other resourc...

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